Thursday, August 16, 2012

moved

On the plane ride over, my daughter colored a picture for her Lyme doctor. And then she asked me to help her write a note to her.  She asked me how to spell the following:

"Dear (Doctor's Name),
I don't like the yellow medicine.

Love, Georgie"

When we arrived for our back-to-back appointments (mine with one P.A in the clinic and hers with the pediatric P.A in the clinic), Georgie gave the beautiful picture to the doctor.  She giggled and said, "Georgie, I love this.  And I'll take this into consideration."

And then commenced the appointment.  I have been very impressed with how much improved my little girl is and so are the doctors.  BUT, it turns out my little girl doesn't complain much about pain.  In our house we don't badger or nag or tell her to tell us every little symptom.  We watch and observe so that we can get the best gauge on a five-year-old's symptoms.  I know my girl and if I told her to tell me every time she had an ache or pain, she'd start being hyper-vigilant about it and I want to just see when she feels it necessary to tell me about symptoms.  And she does!  But she doesn't do it completely we found out.

But this is fine -- this is what the doctor visits are for.  We found out she has some symptoms (we knew about) more often than she's mentioned and also some constant joint pain in her little wrists.  But thankfully no where else!! This is big!  Her first complaints were joint pains in her legs and those are gone!

She gets one more round with the "yellow" medicine and then she's done forever with that!  It seems that Babesia didn't really react to anything so maybe she doesn't have that infection.  Hooray!  Now we are going to focus on the Bartonella and then in January the hope is that she would be taken off the meds.  We are so excited.

My appointment with my doctor went well too!  We thought a few months ago that this appointment would bring the long awaited "maintenance" med routine.  But then some stressful events showed us that my body is just a bit more fragile than we originally thought.  Stress can cause flares if your body hasn't ridden itself of all of the bugs and mine just showed us that.  So while I viewed it as a "setback", the doctor viewed it as a gauge that there's still some infection present that needs attention.  It was quite a relief to hear that.  The Dr. reminded me that my stress reactions have become less and less pronounced and that shows progress and when I asked if stress would always flare me up, she said, "Absolutely not."  Once we finish treatment, and theoretically rid my body of the yucky disease, I shouldn't have any abnormal reaction to stress (than any other normal person).

We are stepping down my protocol (yes!!!) and hopefully in January, we've set our sights on getting to the maintenance med protocol (although we have to make it through the stress of Christmas before that appointment so we'll see how my body does!!)

It was a way more encouraging appointment than I expected. Onward and upward!!

2 comments:

  1. Her letter is too cute! I'm glad your appointment was encouraging.

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